A disorder that's rare, diagnosed at age six.
Causes fear to my family, oh God's little tricks.
Brain tumors and pain, with surgeries to come.
Eleven was my first, I have scars that are from.
Tumors can grow and cause much dismay.
Not to mention hospital bills, expensive to pay.
Feeling alone, not aware of a soul,
Who has this too, a friendship goal.
Ashamed and hidden, no one will know,
Of the pain and fear, I daily undergo.
Growth and acceptance, came as I aged,
Seeing others worse off, tumors enraged.
I met a few friends, the same diagnosis too.
So close to my home, crazy, I never knew.
Surgeries, MRI's and medical tests galore,
Seem much easier. when you've got supporters in store.
I now stand up proud. Judgment? Could care less.
Cause I love me, I don't need to impress.
Adversity and difference used to haunt my thoughts and mind.
But now I proudly shout, "I'm one of a kind".
Neurofibromatosis was once my big fear.
And now I am proud of my diagnosis. It's the reason I'm here.